Registry of people with Primary Immunodeficiencies in Latin America, whose purpose is to collaborate with the health systems in each country with information on PID cases to favor the generation of comprehensive public policies to care for these diseases.
Know the number of people diagnosed, types of diagnoses, types of immunodeficiencies, access to treatment, reasons for hospitalization, attention to comorbidities and disabilities, access to stem cell transplants, gene therapy.
Support and accompany families and people with PID for their access to suitable and comprehensive treatment, in full doses. Accompaniment of caregivers.
Identify families and people with PID who require psychological and / or legal counseling and provide care through allied organizations and associations.
Know the number of people diagnosed, types of diagnoses, types of immunodeficiencies, access to treatment, reasons for hospitalization, attention to comorbidities and disabilities, access to stem cell transplants, gene therapy.
Support and accompany families and people with PID for their access to suitable and comprehensive treatment, in full doses. Accompaniment of caregivers.
Identify families and people with PID who require psychological and / or legal counseling and provide care through allied organizations and associations.
Show More
