Migraine Aura app is an application (app) for smartphones, and is an innovative tool, which aims to enhance the research on migraines with aura. The app supports its users with a tool for documenting aura symptoms at the moment they occur.
This is how you use the app.
We hope you will help the headache research to record at least 3 aura episodes with this app, but preferably more. When the aura starts you will activate the app on the smartphone. Every 1-2 minutes the app will ask you to describe your symptoms.
To get confident with the tasks that you will receive during the aura and to pre-select the most common disturbances you have experienced so far, you can use the aura attack test function.
Conditions
The app does not share any personally identifiable data of the app user. The app stores all of its data in a local storage, where the app is installed. The user can choose whether to synchronise the app with a secure server storage. If this is chosen by the user, the completely anonymised data will be shared with the secure server storage. The app user has an option to stop the synchronisation.
The app user can delete all data registered on him/her, both in the local og server storage. The app does not collect data from the phone of the user.
Headache researchers in Norway and abroad will have access to the database. It will not be possible to identify individual patients.
Regional Committees for Medical and Health Research Ethics (REC-Central) and the Data Protection Office at St. Olavs Hospital, have concluded that the app is not covered by the inquiry obligation, as all data is collected in an anonymised form.
Department of Neuromedicine and Movement Science (INB) at the Norwegian University of Science and Technology (NTNU) has responsibility for processing the data registered in the app, and there is an agreement on responsibility for data processing with the Norwegian consulting company, Fominykh Consulting, a data programme producer for research, education and health.
The app is being continuously developed. Functions and content can be altered without a warning. The developer does not take any responsibility for use, errors or loss of user data.
This is how you use the app.
We hope you will help the headache research to record at least 3 aura episodes with this app, but preferably more. When the aura starts you will activate the app on the smartphone. Every 1-2 minutes the app will ask you to describe your symptoms.
To get confident with the tasks that you will receive during the aura and to pre-select the most common disturbances you have experienced so far, you can use the aura attack test function.
Conditions
The app does not share any personally identifiable data of the app user. The app stores all of its data in a local storage, where the app is installed. The user can choose whether to synchronise the app with a secure server storage. If this is chosen by the user, the completely anonymised data will be shared with the secure server storage. The app user has an option to stop the synchronisation.
The app user can delete all data registered on him/her, both in the local og server storage. The app does not collect data from the phone of the user.
Headache researchers in Norway and abroad will have access to the database. It will not be possible to identify individual patients.
Regional Committees for Medical and Health Research Ethics (REC-Central) and the Data Protection Office at St. Olavs Hospital, have concluded that the app is not covered by the inquiry obligation, as all data is collected in an anonymised form.
Department of Neuromedicine and Movement Science (INB) at the Norwegian University of Science and Technology (NTNU) has responsibility for processing the data registered in the app, and there is an agreement on responsibility for data processing with the Norwegian consulting company, Fominykh Consulting, a data programme producer for research, education and health.
The app is being continuously developed. Functions and content can be altered without a warning. The developer does not take any responsibility for use, errors or loss of user data.
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